In the life of a person with epilepsy, there are constant worries: when to take your pills, what to eat (avoiding stimulants and stuff), to try not to get angry etc. One constant concern is to give all and the correct information to your doctor(s) so that they can do something for you.
I had my first seizure when I was 15, my second one a year later with the third following a month later. There wasn’t any pattern or any visible cause and … I was a teenager. Keeping a record wasn’t really top of the priorities for me. Continue reading “What little it takes to someone to be happy :)”
Two persons (out of not so many readers) asked for a follow-up on yesterday’s post.
Just one thing happened since yesterday: I forgot yet again to write to my neurologist. I’ll do it tomorrow. I promise you (and myself) and I will come with a real follow-up, where I would actually say something that happened.
While then, have a nice sleep (9.43 PM here).
UPDATE: I wrote to my neurologist yesterday. Waiting to see (if) when he replies.
Today is the 25th of March 2018, a Sunday. Things are their usually weird.
Two weeks ago, a Saturday, the 10th of March 2018, things were really, extremely weird. I was out shopping together with my wife a little boy (2 years old and growing) in Zara. Looked at some clothes and shoes for the kid, bought something and took the elevator down to leave the store and counting our shopping elsewhere.
In the elevator, I fell a sudden shock….like I was electrocuted…and dropped my back. My wife got scared and the kid was looking at me….like…. “say what?!?”.
Usually, this happens before a seizure Continue reading “Electric Saturday”
Suicidal thoughts are one of the side effects you can find for every type of AED. Criminal thoughts are less likely, but it appears on boxes from time to time (see Fycompa).
Although I think about (not suicide, nor murder) death sometimes, I never had such thoughts.
And I was wondering: what does death mean to epileptics? A relief? Something to be afraid of? Continue reading “Death to epileptics”
I had an appointment yesterday at my neurologist. This came after a week-long video-EEG monitoring at the end of April and a PET scan done last week. During the video-EEG, I also did some neuro-psych tests, but I did them in a language (French) that I understand at an average level. He didn’t get all the results for my tests, but that’s not important.
My PET scan showed some asymmetry in my left frontal lobe. The doctor said that he doesn’t have all the statistics yet from the scan, so it’s hard to understand the results.
But he did decide, with my consent, to add another AED to my treatment: Fycompa. I’m already on Lamictal and Vimpat, and the doctor said that I’m almost at the toxic limit. Continue reading “Fycompa”