In 2020, I received quite a few messages from people with epilepsy asking about side effects of meds, what kind of seizures I have or how do I handle stress, among other.
But, at the same time, I received questions from people without epilepsy: friends, family, teachers of those with epilepsy. While 90% of the questions were right on the point, the rest was, quite frankly, extremely stupid. Here is my top 3 selection:
- Is epilepsy transmittable? Answer: it was an exchange of three emails -> by transmittable, the guy (USA) meant something like COVID, not genetically. He actually got angry when I said “NO” because that’s the reason why he fired someone. I hope they go to court this year because of this.
- If I drink alcohol and have sex with my boyfriend, will the alcohol in me cause him a seizure? I like to drink. Answer: No. Neither alcohol nor stupidity can be shared through sex.
- Can a brain transplant be done to cure epilepsy? Answer: honestly, this was the only message received last year to which I didn’t respond.
Send messages or emails and you’ll get an answer from my personal experience. But strangers beware, sarcasm is a possibility.
I’m part of a few epilepsy awareness and support groups on Facebook and there are a few topics which keep popping up in discussions, one being education.
People are asking if they were discriminated during school, if they were prohibited for entering school (mostly college and higher), if and if and if… Continue reading “How is education influenced by epilepsy?”
Yesterday, April 8th.
Electric shock sensation throughout the day, ranging from small shocks in my head and chest to full shocks from my head to the soles of my feet. It was horrific.
In the afternoon, I had 3 (perhaps 4) seizures at about half an hour – an hour between them. Not really complex, I didn’t lose consciousness, but I was absent most of the day, while dozing off from time to time.
It seemed like my body was getting ready for something “big”. Continue reading “Electric Sunday – yet again”
In the life of a person with epilepsy, there are constant worries: when to take your pills, what to eat (avoiding stimulants and stuff), to try not to get angry etc. One constant concern is to give all and the correct information to your doctor(s) so that they can do something for you.
I had my first seizure when I was 15, my second one a year later with the third following a month later. There wasn’t any pattern or any visible cause and … I was a teenager. Keeping a record wasn’t really top of the priorities for me. Continue reading “What little it takes to someone to be happy :)”
Two persons (out of not so many readers) asked for a follow-up on yesterday’s post.
Just one thing happened since yesterday: I forgot yet again to write to my neurologist. I’ll do it tomorrow. I promise you (and myself) and I will come with a real follow-up, where I would actually say something that happened.
While then, have a nice sleep (9.43 PM here).
UPDATE: I wrote to my neurologist yesterday. Waiting to see (if) when he replies.