I don’t have a lots of followers for this blog or a huge number of view – about 150-200 views/day. And most of these go to a post about humanity that I wrote in 2013.
However, how I wrote in my previous post, I get questions from time to time. Some stupid, some not. Some from lazy people (as someone commented to my post), some from people who just stumbled upon my blog and don’t care about epilepsy.
At the beginning of each year, I take some time to go back through the questions I got. With 2020 being a hard year on all of us, some of the “good” questions were a bit weird.
Here you go my top three favorites:
- What is epilepsy and why should I care about it? My (honest) response: you shouldn’t care if you don’t know anyone who has epilepsy: friend, family, colleague. Epilepsy is a disorder, not a disease so the only thing you could do is be there and be a friend that person.
- Why are people afraid of people with epilepsy? My (abridged) response: I’m not sure what you mean. I only met people afraid of someone having a (grand mal) seizure while they are with them. But that’s it. Unfortunately, I see that people actually consider those with epilepsy as inferior because we can’t do some things aka drive (for some of us), drink (I wouldn’t drink if I didn’t have epilepsy) etc.
- Is epilepsy dangerous? My response: yes, it is for some of us. For epileptics, imagine having a seizure in the middle of the street. It doesn’t matter if it’s grand mal or absence seizure. You could get hit by a car. For non-epileptics, it’s mostly the scare: imagine you are in a car with someone having a seizure (grand mal). If s/he sits next to you, you might lose focus/attention and get into an accident. But 95% of the time there is no problem.
In 2020, I received quite a few messages from people with epilepsy asking about side effects of meds, what kind of seizures I have or how do I handle stress, among other.
But, at the same time, I received questions from people without epilepsy: friends, family, teachers of those with epilepsy. While 90% of the questions were right on the point, the rest was, quite frankly, extremely stupid. Here is my top 3 selection:
- Is epilepsy transmittable? Answer: it was an exchange of three emails -> by transmittable, the guy (USA) meant something like COVID, not genetically. He actually got angry when I said “NO” because that’s the reason why he fired someone. I hope they go to court this year because of this.
- If I drink alcohol and have sex with my boyfriend, will the alcohol in me cause him a seizure? I like to drink. Answer: No. Neither alcohol nor stupidity can be shared through sex.
- Can a brain transplant be done to cure epilepsy? Answer: honestly, this was the only message received last year to which I didn’t respond.
Send messages or emails and you’ll get an answer from my personal experience. But strangers beware, sarcasm is a possibility.
It’s been more than 1 year since I last wrote here. It’s been an interesting period, with ups and downs.
But the reason I’m writing is not to share life’s challenges. It’s to talk about interesting options I found on tracking my seizures.
There are several possibilities: epilepsy monitors and trackers, apps and journals.
Personally, I’m using Google Docs. Here is the list of epilepsy seizures I ever had: My epilepsy journal. Continue reading “Epilepsy tracking”
I’m part of a few epilepsy awareness and support groups on Facebook and there are a few topics which keep popping up in discussions, one being education.
People are asking if they were discriminated during school, if they were prohibited for entering school (mostly college and higher), if and if and if… Continue reading “How is education influenced by epilepsy?”
A couple of weeks ago, I went on vacation, a real vacation with the family in Greece just to relax and enjoy the sun. Going beyond the sunstroke (which was entirely my fault because I thought I didn’t need sun cream as I have a strong pigment and I get darker easily without being affected by the sun), a problem was that I had a seizure.
We stayed in a five-star resort with several buildings, each with 5-to-10 rooms and two floors (ground + first level). We stayed at the first floor in one of the building.
Moving on, with a 2-year old baby, we had a baby stroller that we needed to get up and down the stairs several times a day. One of these days, when getting ready to get it down the stairs, I had a seizure right on top, a person with epilepsy’s worst nightmare: falling down the stairs. Continue reading “Vacationing with epilepsy”