In 2020, I received quite a few messages from people with epilepsy asking about side effects of meds, what kind of seizures I have or how do I handle stress, among other.
But, at the same time, I received questions from people without epilepsy: friends, family, teachers of those with epilepsy. While 90% of the questions were right on the point, the rest was, quite frankly, extremely stupid. Here is my top 3 selection:
- Is epilepsy transmittable? Answer: it was an exchange of three emails -> by transmittable, the guy (USA) meant something like COVID, not genetically. He actually got angry when I said “NO” because that’s the reason why he fired someone. I hope they go to court this year because of this.
- If I drink alcohol and have sex with my boyfriend, will the alcohol in me cause him a seizure? I like to drink. Answer: No. Neither alcohol nor stupidity can be shared through sex.
- Can a brain transplant be done to cure epilepsy? Answer: honestly, this was the only message received last year to which I didn’t respond.
Send messages or emails and you’ll get an answer from my personal experience. But strangers beware, sarcasm is a possibility.
It’s been more than 1 year since I last wrote here. It’s been an interesting period, with ups and downs.
But the reason I’m writing is not to share life’s challenges. It’s to talk about interesting options I found on tracking my seizures.
There are several possibilities: epilepsy monitors and trackers, apps and journals.
A couple of weeks ago, I went on vacation, a real vacation with the family in Greece just to relax and enjoy the sun. Going beyond the sunstroke (which was entirely my fault because I thought I didn’t need sun cream as I have a strong pigment and I get darker easily without being affected by the sun), a problem was that I had a seizure.
We stayed in a five-star resort with several buildings, each with 5-to-10 rooms and two floors (ground + first level). We stayed at the first floor in one of the building.
Moving on, with a 2-year old baby, we had a baby stroller that we needed to get up and down the stairs several times a day. One of these days, when getting ready to get it down the stairs, I had a seizure right on top, a person with epilepsy’s worst nightmare: falling down the stairs. Continue reading “Vacationing with epilepsy”
Yesterday, April 8th.
Electric shock sensation throughout the day, ranging from small shocks in my head and chest to full shocks from my head to the soles of my feet. It was horrific.
In the afternoon, I had 3 (perhaps 4) seizures at about half an hour – an hour between them. Not really complex, I didn’t lose consciousness, but I was absent most of the day, while dozing off from time to time.
It seemed like my body was getting ready for something “big”. Continue reading “Electric Sunday – yet again”