On May 8th, 2025, I had my last 2 seizures. Until yesterday…. the day started normally: at a corporate team-building, listening to presentation and waiting for the early afternoon break to go explore Lisbon a bit more before the last group activities.

But, during lunch, everything started to seem so familiar. A headache, a feeling of confusion, headspinning… I knew that something was coming. So I gave up my plans and laid down in my room and tried to rest. It’s difficult to even do this … a much of feelings ranging for sadness to disappointment and pure rage come in minutes and change every time to try to thing about something else.

Yesterday evening, I woke up with a swollen tongue that was overly bitten this time and I’m struggling to speak. The night wasn’t kind. Kept waking up every hours or so, either because of my headache, back pain and many other kinds of pain. In morning, I saw the extent of what happened: blood on the floor in the bathroom, in the room – all over the bed – and … on me. My t-shirt had huge blotches of blood, the bedsheets also.

Now, it’s time to restart the count and try to make it longer, much longer.