Dealing with epilepsy · Way too personal

Vacationing with epilepsy

A couple of weeks ago, I went on vacation, a real vacation with the family in Greece just to relax and enjoy the sun. Going beyond the sunstroke (which was entirely my fault because I thought I didn’t need sun cream as I have a strong pigment and I get darker easily without being affected by the sun), a problem was that I had a seizure.

We stayed in a five-star resort with several buildings, each with 5-to-10 rooms and two floors (ground + first level). We stayed at the first floor in one of the building.
Moving on, with a 2-year old baby, we had a baby stroller that we needed to get up and down the stairs several times a day. One of these days, when getting ready to get it down the stairs, I had a seizure right on top, a person with epilepsy’s worst nightmare: falling down the stairs. Continue reading “Vacationing with epilepsy”

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Blog · Dealing with epilepsy

Electric Sunday – yet again

Yesterday, April 8th.

Electric shock sensation throughout the day, ranging from small shocks in my head and chest to full shocks from my head to the soles of my feet. It was horrific.

In the afternoon, I had 3 (perhaps 4) seizures at about half an hour – an hour between them. Not really complex, I didn’t lose consciousness, but I was absent most of the day, while dozing off from time to time.

It seemed like my body was getting ready for something “big”. Continue reading “Electric Sunday – yet again”

Blog · Dealing with epilepsy

What little it takes to someone to be happy :)

In the life of a person with epilepsy, there are constant worries: when to take your pills, what to eat (avoiding stimulants and stuff), to try not to get angry etc. One constant concern is to give all and the correct information to your doctor(s) so that they can do something for you.

I had my first seizure when I was 15, my second one a year later with the third following a month later. There wasn’t any pattern or any visible cause and … I was a teenager. Keeping a record wasn’t really top of the priorities for me. Continue reading “What little it takes to someone to be happy :)”

Blog · Dealing with epilepsy

Electric Saturday – the follow-up

Two persons (out of not so many readers) asked for a follow-up on yesterday’s post.

Just one thing happened since yesterday: I forgot yet again to write to my neurologist. I’ll do it tomorrow. I promise you (and myself) and I will come with a real follow-up, where I would actually say something that happened.

While then, have a nice sleep (9.43 PM here).

UPDATE: I wrote to my neurologist yesterday. Waiting to see (if) when he replies.

Blog · Dealing with epilepsy

Electric Saturday

Today is the 25th of March 2018, a Sunday. Things are their usually weird.

But…

Two weeks ago, a Saturday, the 10th of March 2018, things were really, extremely weird. I was out shopping together with my wife a little boy (2 years old and growing) in Zara. Looked at some clothes and shoes for the kid, bought something and took the elevator down to leave the store and counting our shopping elsewhere.

In the elevator, I fell a sudden shock….like I was electrocuted…and dropped my back. My wife got scared and the kid was looking at me….like…. “say what?!?”.

Usually, this happens before a seizure Continue reading “Electric Saturday”