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World Economic Forum, epilepsy and dealing with it

I was reading this morning one of David Nabarro’s reflections: HERE. It’s about chronic or non-communicable diseases, NCD’s in the eyes of the WHO. I haven’t seen any mention about epilepsy anywhere so I decided to dig deeper.

As the World Economic Forum is taking place these days and the hot subject is the “middle class”, there are many mentions regarding health in the discussions. No mention of idiopathic diseases, neurological disorders and more like this.

I know that epilepsy is not as “cool” like HIV, cancer, diabetes, polio. But really, not even one mention?!? Continue reading

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Short essay on humanity – epilepsy

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Humanity today is regressing. Our views of the world are more limited than ever.  Although new technologies to connect each other emerge every year and every day, our minds are more closed.

We live in a world that punishes those who are different. A person with epilepsy is brought under the microscope, but the lenses are never changed. Our views of those with epilepsy are blurred by opinions from the past.

We live in a world that punishes those who are different. A person with epilepsy often hides his/her condition from friends and colleagues in hope to not be treated differently. The “white-glove” treatment is like pity thrown in our eyes. Continue reading

[Guest post #4] Infertility and in-vitro

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This blog post comes from Switzerland, written by Martine. I love the diversity of people reading my blog and of those wanting to write. One more guest blog post available. Enjoy!

I am Swiss national, but I am born in France and have lived for many, many years in various countries around the world (work reasons). After getting married 11 years ago, my husband and I tried to have a baby. Many attempts later (3 years later) and a (more permanent) move to France, we decided to get tested for fertility.  Continue reading

[Guest post #3]: I am a drug trafficker

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The third guest post comes directly from Germany from Janis. Enjoy!

I was travelling from Bruxelles to New York for a short vacation in the US. As Germany is part of the Visa Waiver Program, I only applied for an ESTA online, without seeking additional info from the embassy.

That was my mistake, I admit it. I only checked a few website, the FDA’s in particular. I followed all instructions: getting a letter in English from the doctor etc.

Arriving in New York was “interesting”: after waiting for the bags, I was “kindly” asked by the Border patrol to come to their office for extra inquiries. This is when I started freaking out. Arriving there, I was submitted to a 2-hours long discussion regarding my meds. Read more for some really interesting stuff!

[Guest post #2] Education is not for people with epilepsy

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The second guest blog post comes directly from India from Advik.

I grew up in the UK as my parents immigrated there back in the ’60s. All throughout my adolescence, I was discriminated against at school, in the playground, in my neighborhood because I was Indian. After a while, I gotten used to it and simply ignored it.

Then my #epilepsy came in. In my second year of secondary school (high school) , I had my first seizure. And it was at school. Professors and colleagues panicked, an ambulance was called, parents came rushing and, you know already, more.

I woke up in the hospital with an IV and a few meds.

Over the year, I had several other seizures at home, at school, in the supermarket and so on. In total: 28 seizures that year. At school, people started making fun of me, imitating my seizures in a cry for attention. And the year went on like that. Continue reading