I first started writing down the number and dates of my seizures about 12-14 years ago, before moving from Romania to Belgium. At first, I just tried to remember the numbers of seizures I had in a year, then I remembered the dates. I remember clearly my first seizure, because, well, it was “my first” and it was in an usual setting and caused a whirlwind of things going wrong in my life.
Continue reading “Keeping notes”Professional cuddling for epilepsy
Professional cuddling, here is something I didn’t know existed. I found about this due to a friend. There are people out there, others than psychologists, pshyciatrists and friends, that offer to help you with a nice talk, a sensitive discussion and a cuddle (for a fee, of course).
But how can this help people with epilepsy?
Continue reading “Professional cuddling for epilepsy”Is it fear or lack of respect that you see the most?
I was speaking with one of those Facebook friends that you never met the other way. She also has a very specific disorder, although not epilepsy, but close to the spectrum.
When asking what she hates the most about her condition, she said “the way the others perceive her”. Thinking about epilepsy, how do friends and acquintances see you and what do you hate about it? I saw in the eyes of people that know about my epilepsy many things, but two stick out:
- Fear – people fear that you’ll have a seizure anytime, anywhere. But the fear is not that you’ll get hurt, but that they won’t be able to handle what is happening.
- Lack of respect – there are many myths about epilepsy (see my past articles) and many people believe them. Many people think that we are all photosensitive, or that we inherited it, or that we have a smaller IQ because of it. The last one is the one I saw many times, regardless of saying to people that Caesar, Dostoyevski, Agatha Christie, Alfred Nobel, Van Gogh and Theodore Rosevelt (among many others) had it.
Myths debunked #2: epilepsy and a sex life
There is a common myth that people with epilepsy cannot have a healthy sex life or that engaging in sexual activity can trigger seizures. This misconception is not true and can lead to unnecessary fear and stigma surrounding the topic.
The reality is that epilepsy, in most cases, does not directly affect a person’s ability to have a fulfilling sex life. Epilepsy is primarily a neurological disorder characterized by recurrent seizures, and its impact on sexual function varies from person to person.
Continue reading “Myths debunked #2: epilepsy and a sex life”Myths debunked
There are several myths and misconceptions surrounding people with epilepsy. It’s important to dispel these myths in order to promote understanding and support for individuals living with epilepsy. Here are some common myths:
Continue reading “Myths debunked”
Dealing with epilepsy 
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