Life under the microscope
We’ve come so far, or so they claim—
No curses now, just a different game.
“We understand,” they proudly say,
Then shift uncomfortably away.
One viral post, one online thread,
And suddenly they’re experts instead.
No demons, myths, or ancient fears,
Just polished doubts in modern years.
Progress? Perhaps. That’s partly true.
Society changed—its ignorance did too.
People often underestimate what chronic exhaustion does to a person.
Not regular tiredness.
Not the kind solved by sleeping eight hours on a Sunday.
The deeper kind.
The one that follows people for years.
Medication can help control seizures, but many anti-epileptic drugs come with a hidden price. Fatigue becomes permanent background noise. Some days it feels manageable. Other days it feels like walking underwater.
He realized after a while that people started associating him with being “the tired guy”.
Continue reading “When tiredness becomes part of your personality”In my first years with epilepsy, I was scared of telling anyone about it. That’s because I was diagnosed at 14. It’s hard enough for an introvert to make friends and adding the image that epilepsy gets in society would have made it worse. In my early years, I didn’t have too many seizures and they happened at home.
Going to university, I had my first public seizure – right before taking one of my first exams. I would have preferred honestly to take the exam instead. In university, I had good friends that knew and understood me. I realized that there are people out there that actually look at the person and not at the disorder. That was good. Not teenagers, but still not adult persons (between 18-24) aren’t judgemental, it seems.
Continue reading “A friend in need”I was speaking with one of those Facebook friends that you never met the other way. She also has a very specific disorder, although not epilepsy, but close to the spectrum.
When asking what she hates the most about her condition, she said “the way the others perceive her”. Thinking about epilepsy, how do friends and acquintances see you and what do you hate about it? I saw in the eyes of people that know about my epilepsy many things, but two stick out:
Dating can be an exhilarating journey filled with anticipation, butterflies, and the hope of finding a lasting connection. However, for individuals living with epilepsy, the experience of dating can come with unique challenges and uncertainties. In this blog post, we will explore the problems that people with epilepsy often encounter while dating and offer some insights on how to address them.
Suggestion: It’s important to remember that epilepsy is a medical condition and not a reflection of one’s character or worth. When considering disclosing your epilepsy, choose a comfortable and appropriate time to have an open conversation. Education and dispelling common misconceptions about epilepsy can help alleviate fears and foster understanding.
Continue reading “Navigating love with epilepsy: challenges faced when dating”
Dealing with epilepsy 
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