It’s been more than 1 year since I last wrote here. It’s been an interesting period, with ups and downs.
But the reason I’m writing is not to share life’s challenges. It’s to talk about interesting options I found on tracking my seizures.
There are several possibilities: epilepsy monitors and trackers, apps and journals.
Personally, I’m using Google Docs. Here is the list of epilepsy seizures I ever had: My epilepsy journal. Continue reading “Epilepsy tracking”
I’m part of a few epilepsy awareness and support groups on Facebook and there are a few topics which keep popping up in discussions, one being education.
People are asking if they were discriminated during school, if they were prohibited for entering school (mostly college and higher), if and if and if… Continue reading “How is education influenced by epilepsy?”
A couple of weeks ago, I went on vacation, a real vacation with the family in Greece just to relax and enjoy the sun. Going beyond the sunstroke (which was entirely my fault because I thought I didn’t need sun cream as I have a strong pigment and I get darker easily without being affected by the sun), a problem was that I had a seizure.
We stayed in a five-star resort with several buildings, each with 5-to-10 rooms and two floors (ground + first level). We stayed at the first floor in one of the building.
Moving on, with a 2-year old baby, we had a baby stroller that we needed to get up and down the stairs several times a day. One of these days, when getting ready to get it down the stairs, I had a seizure right on top, a person with epilepsy’s worst nightmare: falling down the stairs. Continue reading “Vacationing with epilepsy”
Yesterday, April 8th.
Electric shock sensation throughout the day, ranging from small shocks in my head and chest to full shocks from my head to the soles of my feet. It was horrific.
In the afternoon, I had 3 (perhaps 4) seizures at about half an hour – an hour between them. Not really complex, I didn’t lose consciousness, but I was absent most of the day, while dozing off from time to time.
It seemed like my body was getting ready for something “big”. Continue reading “Electric Sunday – yet again”
In the life of a person with epilepsy, there are constant worries: when to take your pills, what to eat (avoiding stimulants and stuff), to try not to get angry etc. One constant concern is to give all and the correct information to your doctor(s) so that they can do something for you.
I had my first seizure when I was 15, my second one a year later with the third following a month later. There wasn’t any pattern or any visible cause and … I was a teenager. Keeping a record wasn’t really top of the priorities for me. Continue reading “What little it takes to someone to be happy :)”