My Ethiopian seizure

In 2014, I went to Ethiopia for the “Building Resilience for Food and Nutrition Security” conference (organized by IFPRI). The name is more complex than the conference itself.

I had the opportunity of giving a presentation in their “Rapid Fire Presentations” part. Of course, I was very timid, as always, and I’m not sure if people understood what I was saying.

Anyway…I’m just bragging.

In the morning of the second of the conference, I woke up on the bathroom floor with a few bruises and my lips bitten a bit. It wasn’t really visible, but it was enough for me to know what happened.

I was preparing to go and listen a few other presentations and to comment or ask questions, when, suddenly, it happened.

I’m telling you his I found that common factor of my seizures: extremely long flights (or any kind of transport). The exception was my trip to Uruguay.  

I don’t know why, but I’m happy. For both Uruguay and Ethiopia.

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[Guest post #1]: Job seeking for a person with #epilepsy

My first guest blog post comes directly from the US: Orlando from Saint Paul, Minnesota.

People said to me that a person with epilepsy can’t do the same job as a person (without epilepsy) can, at the same level of experience, education, skills set. So that person with epilepsy should look at a level lower than what they think is good for them.

I think this is crap. I was diagnosed with epilepsy about 20 years ago and, since then, I studied my ass off and worked, from day 1, in a competitive field at a level which many of my colleagues reached after a few years.

But, as it goes, I’m unemployed right now. Continue reading “[Guest post #1]: Job seeking for a person with #epilepsy”

Routines and how some aren’t really important

For some time now, I wanted to write an article on this: the day-to-day routines to which a person with epilepsy must adapt.

Going over the most well-known: pills and sleeping. The very first time I was diagnosed (it happened multiple times, but that’s the subject of an upcoming article), the neurologist told me that if I don’t take the pills exactly 12 hours apart, than it’s useless. Continue reading “Routines and how some aren’t really important”

Yet another seizure

A few days ago, I had another seizure. This time, I didn’t see it coming, no aura, no nothing. I wasn’t tired, no more than any other father of a baby, nor was I stressed out because of something.

It just happened. Unfortunately, it happened when I was watching a movie with my wife (and our baby beside) and I scared them a little. The aftermath: a cracked lip, nothing more. Of course, I don’t mention here the usual migraine and extreme fatigue that comes with the territory.

I’m writing about this because something weird and a first-timer happened: Continue reading “Yet another seizure”

Alcohol

Ever since I was diagnosed with epilepsy, everyone told me that all stimulants (alcohol, coffee, drugs – like crystal meth, cocaine etc.) are off-limits because they might cause a seizure. That’s something that all persons with epilepsy are told.

But someone recently told that his neurologist recommended moderation instead of abstinence. If you drink a glass of wine once in a while, it’s ok. That’s something weird. I told my neurologist and he said the same.

So what’s the deal?!? Marijuana is now considered as a possible alternative to current meds even if THC (the active substance) is considered as having stimulant effects.

I never drank, smoked any of the possible stimulants out of principle. I would try medical marijuana, but I am still curious whether or not alcohol, caffeine and so on are still off-limits or just moderation is recommended.