I first started writing down the number and dates of my seizures about 12-14 years ago, before moving from Romania to Belgium. At first, I just tried to remember the numbers of seizures I had in a year, then I remembered the dates. I remember clearly my first seizure, because, well, it was “my first” and it was in an usual setting and caused a whirlwind of things going wrong in my life.
I have still years for which I don’t remember the number of seizures or the dates, mostly from my university years. Those are pretty unclear.
Then, I started to think about the types of seizures. Were they all tonic clonic or were there also myoclonic or absence or …? I’m still processing the cluster seizures I had a few times in the past years and what they meant.
But is it really useful to keep notes?
Dealing with epilepsy 