Dealing with epilepsy

Myths debunked

There are several myths and misconceptions surrounding people with epilepsy. It’s important to dispel these myths in order to promote understanding and support for individuals living with epilepsy. Here are some common myths:

Continue reading “Myths debunked”
Blog · Dealing with epilepsy · Way too personal

Navigating love with epilepsy: challenges faced when dating

Dating can be an exhilarating journey filled with anticipation, butterflies, and the hope of finding a lasting connection. However, for individuals living with epilepsy, the experience of dating can come with unique challenges and uncertainties. In this blog post, we will explore the problems that people with epilepsy often encounter while dating and offer some insights on how to address them.

  1. The Fear of Disclosure: One of the most significant challenges faced by individuals with epilepsy when dating is deciding when and how to disclose their condition. Fear of stigma, misconceptions, and rejection often complicate this process. Some individuals may worry that their potential partners will view their epilepsy as a burden or a barrier to a healthy relationship. Striking the right balance between openness and personal privacy can be a delicate task.

Suggestion: It’s important to remember that epilepsy is a medical condition and not a reflection of one’s character or worth. When considering disclosing your epilepsy, choose a comfortable and appropriate time to have an open conversation. Education and dispelling common misconceptions about epilepsy can help alleviate fears and foster understanding.

Continue reading “Navigating love with epilepsy: challenges faced when dating”
Dealing with epilepsy

Living with epilepsy – how bad it is

Quite a while back, I realized that living with epilepsy has multiple sides to it, and I kept thinking (and complaining here) of just one: just my point of view as a person with epilepsy.

But there is something else to think about: how it affects the people around you. I got a harsh reminder a few weeks ago when I had a seizure at home with just my 7yo kid around. I taught him the procedure: go on my phone, click on the emergency call and call the emergency numbers I set up there (my neighbor across the street and his mother).

He did that; he even called my neighbor on my desktop WhatsApp app because the laptop was open when all happened. He left voice messages to people, opened the intercom in the building and let my neighbor in.

Blog · Dealing with epilepsy · Way too personal

Back or not?

A friend suggested that I should restart writing here a few minutes ago. I have been thinking about it for a while, but I’ve been busy (another word for lazy in this context).

But here it goes … new article coming up soon.

Blog · Dealing with epilepsy · Not too personal

The “No way out” line you get at the beginning

There are two types of reactions from doctors when you’re newly diagnosed and three types of reactions from people with epilepsy.

People would epilepsy can be split into the “don’t give a f*ck, I’ll do what I want” and the “I need to close myself into a closet made of pillows to not get hurt”. Plus there are those that make Google richer: searching non-stop for info about epilepsy: causes, triggers, treatment, online chats, epilepsy fellowships to colleges (yes, these exist in some countries), etc.

Doctors can either try to comfort you or simply tell you what you have and show you the door.

I would like to speak about the second category. Continue reading “The “No way out” line you get at the beginning”