Blog · Dealing with epilepsy

Death to epileptics

Suicidal thoughts are one of the side effects you can find for every type of AED. Criminal thoughts are less likely, but it appears on boxes from time to time (see Fycompa).

Although I think about (not suicide, nor murder) death sometimes, I never had such thoughts.

And I was wondering: what does death mean to epileptics? A relief? Something to be afraid of? Continue reading “Death to epileptics”

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Misconceptions · Not too personal · Old blog

#GettingPersonal The epilepsy in me

I wrote a couple of months ago a post regarding what people with chronic illnesses hate most (see HERE). To the pity looks I mentioned there, I have to add the annoyance of medication.

When you tried X number of treatments, having to take pills several times a day is really annoying, especially if you take several types of drug. On a scale from 1 to 10 of annoyance levels, medication would probably be around 7 or 8.

The horror of medication begins with going through several types of drugs, indeed. I went through 4 or 5 of them up till now. For all, I developed a resistance after reaching the maximum dose allowed for adults. Fenobarbital was the first.

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My neurologist recently told me that we need to change treatment (he added a new drug) and see how that will go. He’ll see me again in six months if no effects appear. He mentioned side effects like double vision, suicidal tendencies and a few others. If this doesn’t work either, we’ll have to check surgical options.

But one thing I know: No one will ever touch my brain!! It`s my best asset and it will stay the way it is.