Misconceptions · Not too personal · Old blog

#GettingPersonal The epilepsy in me

I wrote a couple of months ago a post regarding what people with chronic illnesses hate most (see HERE). To the pity looks I mentioned there, I have to add the annoyance of medication.

When you tried X number of treatments, having to take pills several times a day is really annoying, especially if you take several types of drug. On a scale from 1 to 10 of annoyance levels, medication would probably be around 7 or 8.

The horror of medication begins with going through several types of drugs, indeed. I went through 4 or 5 of them up till now. For all, I developed a resistance after reaching the maximum dose allowed for adults. Fenobarbital was the first.

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My neurologist recently told me that we need to change treatment (he added a new drug) and see how that will go. He’ll see me again in six months if no effects appear. He mentioned side effects like double vision, suicidal tendencies and a few others. If this doesn’t work either, we’ll have to check surgical options.

But one thing I know: No one will ever touch my brain!! It`s my best asset and it will stay the way it is.