There are several myths and misconceptions surrounding people with epilepsy. It’s important to dispel these myths in order to promote understanding and support for individuals living with epilepsy. Here are some common myths:
Continue reading “Myths debunked”Navigating love with epilepsy: challenges faced when dating
Dating can be an exhilarating journey filled with anticipation, butterflies, and the hope of finding a lasting connection. However, for individuals living with epilepsy, the experience of dating can come with unique challenges and uncertainties. In this blog post, we will explore the problems that people with epilepsy often encounter while dating and offer some insights on how to address them.
- The Fear of Disclosure: One of the most significant challenges faced by individuals with epilepsy when dating is deciding when and how to disclose their condition. Fear of stigma, misconceptions, and rejection often complicate this process. Some individuals may worry that their potential partners will view their epilepsy as a burden or a barrier to a healthy relationship. Striking the right balance between openness and personal privacy can be a delicate task.
Suggestion: It’s important to remember that epilepsy is a medical condition and not a reflection of one’s character or worth. When considering disclosing your epilepsy, choose a comfortable and appropriate time to have an open conversation. Education and dispelling common misconceptions about epilepsy can help alleviate fears and foster understanding.
Continue reading “Navigating love with epilepsy: challenges faced when dating”Living with epilepsy – how bad it is
Quite a while back, I realized that living with epilepsy has multiple sides to it, and I kept thinking (and complaining here) of just one: just my point of view as a person with epilepsy.
But there is something else to think about: how it affects the people around you. I got a harsh reminder a few weeks ago when I had a seizure at home with just my 7yo kid around. I taught him the procedure: go on my phone, click on the emergency call and call the emergency numbers I set up there (my neighbor across the street and his mother).
He did that; he even called my neighbor on my desktop WhatsApp app because the laptop was open when all happened. He left voice messages to people, opened the intercom in the building and let my neighbor in.
Dreams, “dreaming,” or something I don’t understand?
I have no idea what has happened in the last few weeks, but my dreams keep getting weirder.
They are not related between them in any way or related to epilepsy. Thus, a new part of the blog begins, trying to map out my dreams and keeping me from forgetting them.
Cluster seizures and what they can do to you
Doctors define cluster seizures as having two or more seizures within 24 hours.
Well, on December 28th, I had 5 seizures in about 5-6 hours, with the last one being on a stretcher when the ambulance came to pick me up after the first ones. From my perspective, it wasn’t extraordinary. I finally realized what focal seizures are (I had 2 in bed and came back from them in seconds), but, as any idiot would do, after a while, I wanted to take a shower, so I fell in the bathroom, hitting the floor and leaving a lot of blood there.
But at least I got to spend New Year’s Eve in the hospital :)). Not that that is a good thing. In those 10 days there (December 28th to January 6th), I lost a lot of blood, but only to lab testing, and, for the first time ever, I had a seizure while doing an EEG. It was the first time seizure activity was seen -> just a focal seizure of 2-3 seconds, but still.
But things could only get better, people would say, especially if your treatment is adapted. Remember those lab tests?!? It seems my kidneys wanted to join in on the fun: renal artery stenosis – the official diagnosis of what a nephrologist found.
Yey …. but everything is getting better and will be better. A new year, a new day, all work and play.
Dealing with epilepsy 
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