Dealing with epilepsy

Yet another seizure

A few days ago, I had another seizure. This time, I didn’t see it coming, no aura, no nothing. I wasn’t tired, no more than any other father of a baby, nor was I stressed out because of something.

It just happened. Unfortunately, it happened when I was watching a movie with my wife (and our baby beside) and I scared them a little. The aftermath: a cracked lip, nothing more. Of course, I don’t mention here the usual migraine and extreme fatigue that comes with the territory.

I’m writing about this because something weird and a first-timer happened: Continue reading “Yet another seizure”

Dealing with epilepsy

Alcohol

Ever since I was diagnosed with epilepsy, everyone told me that all stimulants (alcohol, coffee, drugs – like crystal meth, cocaine etc.) are off-limits because they might cause a seizure. That’s something that all persons with epilepsy are told.

But someone recently told that his neurologist recommended moderation instead of abstinence. If you drink a glass of wine once in a while, it’s ok. That’s something weird. I told my neurologist and he said the same.

So what’s the deal?!? Marijuana is now considered as a possible alternative to current meds even if THC (the active substance) is considered as having stimulant effects.

I never drank, smoked any of the possible stimulants out of principle. I would try medical marijuana, but I am still curious whether or not alcohol, caffeine and so on are still off-limits or just moderation is recommended.

Blog · Dealing with epilepsy

Epilepsy at work sucks

I had many jobs and my CV looks like that of a teenager that worked flipping burgers each summer for some extra cash (except that my jobs didn’t involve burgers).

I wrote before about the only seizure I had at work and how co-workers reacted. That was great.

But, in general, there is a problem, either when having an interview or a few months after the employment. I experienced both. Continue reading “Epilepsy at work sucks”

Dealing with epilepsy

Epilepsy and air travel

Every person with epilepsy that has ever traveled by plane knows this: airport checks are “interesting“.

As I already mentioned in another post, I always travel with the pills I need for the duration of the trip plus an extra 10% as a provision (stored in another pocket/handbag). There’s no problem with this on short trips (1-2 days: city breaks or business travel) when you go through the airport security checks. It’s easy to say “I need 10 pills until I come back tomorrow afternoon“.

But things get complicated when you go on vacation (for a week minimum). Usually, in the EU, you can travel with as many pills you want if you have an explanation. But when you travel outside Europe things change. Continue reading “Epilepsy and air travel”

Blog · Dealing with epilepsy

Epilepsy and blogging

When I changed the subject of my blog to “Dealing with epilepsy“, many people asked me why. Many were shocked about the fact that I have or might have (in some cases) epilepsy.

I actually wrote about having epilepsy last year, but it doesn’t matter now.

Changing everything was difficult. Creating new logos and social media accounts (Facebook and Twitter) was interesting, but getting content is far worst.

I had no idea that there were thousands of blogs dealing with epilepsy, but only a few with personal experiences.

I’m searching for tips on what to write on this blog and why. I got some really good insights on Twitter and I’ll write about employment and related issues soon, but what next?!?