Life under the microscope
I had many jobs and my CV looks like that of a teenager that worked flipping burgers each summer for some extra cash (except that my jobs didn’t involve burgers).
I wrote before about the only seizure I had at work and how co-workers reacted. That was great.
But, in general, there is a problem, either when having an interview or a few months after the employment. I experienced both. Continue reading “Epilepsy at work sucks”
Every person with epilepsy that has ever traveled by plane knows this: airport checks are “interesting“.
As I already mentioned in another post, I always travel with the pills I need for the duration of the trip plus an extra 10% as a provision (stored in another pocket/handbag). There’s no problem with this on short trips (1-2 days: city breaks or business travel) when you go through the airport security checks. It’s easy to say “I need 10 pills until I come back tomorrow afternoon“.
But things get complicated when you go on vacation (for a week minimum). Usually, in the EU, you can travel with as many pills you want if you have an explanation. But when you travel outside Europe things change. Continue reading “Epilepsy and air travel”
When I changed the subject of my blog to “Dealing with epilepsy“, many people asked me why. Many were shocked about the fact that I have or might have (in some cases) epilepsy.
I actually wrote about having epilepsy last year, but it doesn’t matter now.
Changing everything was difficult. Creating new logos and social media accounts (Facebook and Twitter) was interesting, but getting content is far worst.
I had no idea that there were thousands of blogs dealing with epilepsy, but only a few with personal experiences.
I’m searching for tips on what to write on this blog and why. I got some really good insights on Twitter and I’ll write about employment and related issues soon, but what next?!?
It’s always interesting to go on vacation: the list-making, packing and unpacking, rushing to the airport, meeting relatives and friends and so on. Personally, I love the first two parts.
It’s even more interesting when you have epilepsy. You have to start your list with counting how many pills you need throughout the vacation, for the trip…and then add 10% to be safe. Continue reading “Epilepsy on vacation”
When I speak (online) with people with epilepsy, most of them say they are trying to live a normal life. Others say they want to feel normal.
So my question was: what is normal for a person with epilepsy?
For me, although I strive to become seizure-free, normal includes my meds, their side-effects, the “white gloves” and many other things. I can’t honestly say that I live and think the same way I didn’t before being diagnosed. Continue reading “Normality for a person with epilepsy”
Dealing with epilepsy 
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