Dealing with epilepsy

Routines and how some aren’t really important

For some time now, I wanted to write an article on this: the day-to-day routines to which a person with epilepsy must adapt.

Going over the most well-known: pills and sleeping. The very first time I was diagnosed (it happened multiple times, but that’s the subject of an upcoming article), the neurologist told me that if I don’t take the pills exactly 12 hours apart, than it’s useless. Continue reading “Routines and how some aren’t really important”

Dealing with epilepsy

Yet another seizure

A few days ago, I had another seizure. This time, I didn’t see it coming, no aura, no nothing. I wasn’t tired, no more than any other father of a baby, nor was I stressed out because of something.

It just happened. Unfortunately, it happened when I was watching a movie with my wife (and our baby beside) and I scared them a little. The aftermath: a cracked lip, nothing more. Of course, I don’t mention here the usual migraine and extreme fatigue that comes with the territory.

I’m writing about this because something weird and a first-timer happened: Continue reading “Yet another seizure”

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Party animal

I have never been a “party animal“. Actually, if I look back, I’ve been to less than 10 parties in my entire life, and I’m 32 years old.

But the discussion is about what is generally perceived as “party animal“. I would say that a “party animal” doesn’t. There are just people enjoying life. If it’s the right way to do it or not, that is not my decision.

Other (non-epileptic) people would say that those persons staying up night after night dancing and drinking from dusk ’til dawn are real party animals. Continue reading “Party animal”

Dealing with epilepsy

Alcohol

Ever since I was diagnosed with epilepsy, everyone told me that all stimulants (alcohol, coffee, drugs – like crystal meth, cocaine etc.) are off-limits because they might cause a seizure. That’s something that all persons with epilepsy are told.

But someone recently told that his neurologist recommended moderation instead of abstinence. If you drink a glass of wine once in a while, it’s ok. That’s something weird. I told my neurologist and he said the same.

So what’s the deal?!? Marijuana is now considered as a possible alternative to current meds even if THC (the active substance) is considered as having stimulant effects.

I never drank, smoked any of the possible stimulants out of principle. I would try medical marijuana, but I am still curious whether or not alcohol, caffeine and so on are still off-limits or just moderation is recommended.

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Epilepsy and employment

In relation with my earlier post called “Epilepsy at work sucks“, I got a weird message from a recruiter I once met. It wasn’t a “professional encounter” (aka interview).

He mentioned that, in some countries, it is indeed illegal to ask, in any form, if a person has a chronic disease/disorder. But, in most European countries, there is a practice to ask if “you are a person with a disability” and if you need special assistance for participating in tests/interviews. They actually give a very comprehensive list of diseases/disorders to “choose from“. The list includes epilepsy too. Continue reading “Epilepsy and employment”