Dealing with epilepsy · Misconceptions · Way too personal

Why epilepsy really sucks

A few days ago, I wrote about my latest seizure from last week: happening at a company retreat, bla bla bla. The reason why it mattered so much to me wasn’t that it happened there or that, after a week, my tongue is still numb from bitting it and I have trouble speaking.

What really sucked is that I have to turn back the clock. Before this seizure, the last one that I had was a bit over a year ago and it was a mild one: I knew it was coming, I stayed in bed that afternoon and I woke that evening for a few minutes feeling that it happened (received external confirmation also).

But epilepsy sucks because, sometimes, you get hope that it went away and you can enjoy life and then it comes back with a literal bang.

The new count is now at 7 days.

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