Blog · Dealing with epilepsy

Electric Saturday – the follow-up

Two persons (out of not so many readers) asked for a follow-up on yesterday’s post.

Just one thing happened since yesterday: I forgot yet again to write to my neurologist. I’ll do it tomorrow. I promise you (and myself) and I will come with a real follow-up, where I would actually say something that happened.

While then, have a nice sleep (9.43 PM here).

UPDATE: I wrote to my neurologist yesterday. Waiting to see (if) when he replies.

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Blog · Dealing with epilepsy

Fycompa

I had an appointment yesterday at my neurologist. This came after a week-long video-EEG monitoring at the end of April and a PET scan done last week. During the video-EEG, I also did some neuro-psych tests, but I did them in a language (French) that I understand at an average level. He didn’t get all the results for my tests, but that’s not important.

My PET scan showed some asymmetry in my left frontal lobe. The doctor said that he doesn’t have all the statistics yet from the scan, so it’s hard to understand the results.

But he did decide, with my consent, to add another AED to my treatment: Fycompa. I’m already on Lamictal and Vimpat, and the doctor said that I’m almost at the toxic limit. Continue reading “Fycompa”

Dealing with epilepsy

Trouble sleeping

It’s been a few years since I slept without waking up in the middle of the night or without a headache the next day. This excludes the days when I “slept like a baby” because I was extremely tired after working, shopping, travelling and other stuff like that.

It turns out that one of the “secondary effects” of epilepsy (the disorder) is having sleep disorders. What’s odd about this is that the lack of sleep or a really disturbed sleep can cause seizures. This is also my case, my seizures being provoked by fatigue and stress.

The second thing is that anticonvulsants should have a “sleeping” effect on the body, but most of the times it ends up in giving you a constant state of fatigue like you are sleepwalking (or sleep-running the marathon) each night.

Just wondering: are sleeping pills a solution? My neurologist recommended me to take a sleeping pill once in a while, but I didn’t want to. I’ll get back to you on this.