Blog · Dealing with epilepsy

Fycompa

I had an appointment yesterday at my neurologist. This came after a week-long video-EEG monitoring at the end of April and a PET scan done last week. During the video-EEG, I also did some neuro-psych tests, but I did them in a language (French) that I understand at an average level. He didn’t get all the results for my tests, but that’s not important.

My PET scan showed some asymmetry in my left frontal lobe. The doctor said that he doesn’t have all the statistics yet from the scan, so it’s hard to understand the results.

But he did decide, with my consent, to add another AED to my treatment: Fycompa. I’m already on Lamictal and Vimpat, and the doctor said that I’m almost at the toxic limit. Continue reading “Fycompa”

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Dealing with epilepsy

Yet another seizure

A few days ago, I had another seizure. This time, I didn’t see it coming, no aura, no nothing. I wasn’t tired, no more than any other father of a baby, nor was I stressed out because of something.

It just happened. Unfortunately, it happened when I was watching a movie with my wife (and our baby beside) and I scared them a little. The aftermath: a cracked lip, nothing more. Of course, I don’t mention here the usual migraine and extreme fatigue that comes with the territory.

I’m writing about this because something weird and a first-timer happened: Continue reading “Yet another seizure”

Dealing with epilepsy

Realizing what epilepsy is to you

One year later, when everything was forgotten and I moved past what happened that New Year’s Eve, I had another seizure. In fact, two more seizures coming three weeks apart: one in February just after my birthday and one in March. All I remember is that I woke up with my mom and my sister hovering over me.

I was then officially diagnosed with grand mal epilepsy aka generalized tonic-clonic seizures. It seemed that the EEGs showed that I have something “different” in the left-side of the brain waves. No one explained what that meant exactly.

I realized what epilepsy is to me after I was prescribed Phenobarbital and had to set up a routineĀ for taking them. It was a game-changer for a 15-year old high school kid.

Note: Epilepsy occurs when 2 or more seizures occur unprovoked by any immediately identifiable cause. In order to be diagnosed with epilepsy, these seizures must occur more than 24 hours apart.