Dealing with epilepsy

I liked my “seizures at home” period as an adolescent

As I had my first seizure in 1999 and was officially diagnosed with epilepsy in 2000, I can say that I was in the middle of my adolescence when those things happened.

My mother, sister and myself lived in a 2-bedroom apartment (plus a huge living room) of about 70 sqm (750 square foot). But we all bundled up in one bedroom because that was better. We watched movies every night and had a laugh.  Continue reading “I liked my “seizures at home” period as an adolescent”

Dealing with epilepsy

My “favorite” seizure: epilepsy at work

My first job, back in 2008, was in consultancy. To be more precise, I wrote project proposals that helped private/public sector entities to get European funding. My second job was the same.

The field is an extremely tiresome and stressful. It was a job where the smallest mistake could have cause a project to be successful or rejected.

During the one year, I spent in the second company, I had a seizure at work. It came after a few long days, a week or so before a project submission deadline. But my colleague and bosses were great. Continue reading “My “favorite” seizure: epilepsy at work”

Dealing with epilepsy

Why I started counting my seizures again

For those who read my earlier post, you already know that I stopped counting my seizures between 2001 and 2005. This was the decision of an adolescent (I was 17 years old in 2001) who didn’t want his life overturned by epilepsy.

In 2006, a series of events came into play. I started my Bachelor studies in 2003 and, soon after, I had seizures “out-in-the-open”. I wasn’t ready to tell everyone that I had epilepsy. But, in my junior year, I had a seizure in the IT lab, almost breaking a keyboard with my head (I still have a scar over my left eye). After that I had a seizure in front of the grocery store near my dorm and so on. Before my first exam (math), I had a seizure (5 minutes before to be more precise). Continue reading “Why I started counting my seizures again”

Dealing with epilepsy

Why I stopped counting my seizures

Despite what you can see on my “About me” page in my “seizures’ calendar“, between 2001 and 2005, I stopped counting my seizures and writing down the days. What you see in the calendar is an average per year, although in some years there were more, in others less. But I had them each year.

The reason was an obvious one: I did not want epilepsy to take over my life. I recognized (to myself) that I was a person with epilepsy. I said to myself that if I am not fully aware of them, I can carry with “business-as-usual”. It didn’t work out as I wanted.