Misconceptions · Not too personal · Old blog

#GettingPersonal The epilepsy in me

I wrote a couple of months ago a post regarding what people with chronic illnesses hate most (see HERE). To the pity looks I mentioned there, I have to add the annoyance of medication.

When you tried X number of treatments, having to take pills several times a day is really annoying, especially if you take several types of drug. On a scale from 1 to 10 of annoyance levels, medication would probably be around 7 or 8.

The horror of medication begins with going through several types of drugs, indeed. I went through 4 or 5 of them up till now. For all, I developed a resistance after reaching the maximum dose allowed for adults. Fenobarbital was the first.


My neurologist recently told me that we need to change treatment (he added a new drug) and see how that will go. He’ll see me again in six months if no effects appear. He mentioned side effects like double vision, suicidal tendencies and a few others. If this doesn’t work either, we’ll have to check surgical options.

But one thing I know: No one will ever touch my brain!! It`s my best asset and it will stay the way it is.

Blog · Misconceptions · Old blog

Update to Misconception #1: the things which people with chronic illnesses hate

I wrote two days ago the article on what people with chronic illnesses hate the most (besides the illness itself). See the article HERE.

The main purpose of the article was not to tell people that I have epilepsy or to take something off my soul. The idea was to explain to people what they do (around someone with chronic illnesses) and why they shouldn’t do anymore.

It`s funny: after people found out about my epilepsy, the first thing they did was to behave as they shouldn’t have done it. They sent me sympathy emails, Skype and Facebook messages in which they explained that they support me and that they are right behind me. As I said, it`s funny :). The real thing to read about

Blog · Misconceptions · Old blog

Misconception #1: the things which people with chronic illnesses hate

Every person who suffers from a chronic illness (be it Parkinson, cancer, a heart disease or brain dysfunction) is faced with tough choices that regards their life.

You have to be careful when to get your treatment, what doctor might help you the best and so on. You have to choose what to do with your life, looking from the perspective of their illness.

Can you do that or should you do that? Can you work in that field or should you settle for less? Can you get married and have kids when you can guess what effects your illness might have on those close to you?

Can you have a normal life and tell people you suffer from illness X? The answer is yes..only if…

From my point of view, the worst part of having a chronic illness is not the limitations, nor the pain or the treatment you must go through for every day of your life. The worst part is the inter-human relations. Why the answer is YES