Dealing with epilepsy

Short essay on humanity – epilepsy

Humanity today is regressing. Our views of the world are more limited than ever.  Although new technologies to connect each other emerge every year and every day, our minds are more closed.

We live in a world that punishes those who are different. A person with epilepsy is brought under the microscope, but the lenses are never changed. Our views of those with epilepsy are blurred by opinions from the past.

We live in a world that punishes those who are different. A person with epilepsy often hides his/her condition from friends and colleagues in hope to not be treated differently. The “white-glove” treatment is like pity thrown in our eyes. Continue reading “Short essay on humanity – epilepsy”

Dealing with epilepsy

Trouble sleeping

It’s been a few years since I slept without waking up in the middle of the night or without a headache the next day. This excludes the days when I “slept like a baby” because I was extremely tired after working, shopping, travelling and other stuff like that.

It turns out that one of the “secondary effects” of epilepsy (the disorder) is having sleep disorders. What’s odd about this is that the lack of sleep or a really disturbed sleep can cause seizures. This is also my case, my seizures being provoked by fatigue and stress.

The second thing is that anticonvulsants should have a “sleeping” effect on the body, but most of the times it ends up in giving you a constant state of fatigue like you are sleepwalking (or sleep-running the marathon) each night.

Just wondering: are sleeping pills a solution? My neurologist recommended me to take a sleeping pill once in a while, but I didn’t want to. I’ll get back to you on this.

Dealing with epilepsy

5 things that a “junior” person with epilepsy doesn’t understand

There are things only a person with epilepsy knows and understands, but there things a newly diagnosed person with epilepsy doesn’t understand.

  1. Epilepsy is not a disease – although there is not an official definition, epilepsy is not considered a disease, but a disorder (in the electrical functioning of the brain). When someone calls you sick, just tell them you are as sick as they are. It’s the truth.
  2. Photosensitivity is not a rule – although many people associate epilepsy with flashing lights, only 2-3% of people with epilepsy are photosensitive. So don’t worry: you can watch TV, go dancing with friends or play karaoke, with some precautions. Epilepsy seizures can be triggered by fatigue also.
  3. Epilepsy doesn’t mean decreased intelligence – although many associate epilepsy with a lower IQ (than in general), this correlation is NOT true. To give some examples to prove this -> famous people with epilepsy: Isaac Newton, Leonardo da Vinci, Aristotle, Julius Caesar, Agatha Christie, Richard Burton, Neil Young, Danny Glover and many, many others. Just to name a few.
  4. Epilepsy doesn’t mean seclusion – with some precautions, people with epilepsy have a normal life as any other person in the world: personal life, education, work and so on.
  5. Epilepsy isn’t rare – there are over 50 million people diagnosed with epilepsy in the world. Each year, about 200,000 persons are diagnosed with a different type of epilepsy. During their life, 1 in 40 persons will experience some type of seizure.